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Please refer to your standard setter(s) for specific reporting requirements before using the Casefinding List
2012 Comprehensive ICD-9-CM Casefinding Code List for Reportable Tumors (with equivalent ICD-10-CM codes)
| ICD-9-CM Code* | ICD-10-CM Code** | Explanation of ICD-9-CM Code |
|---|---|---|
| 140._ - 172._, 174._ - 209.36, 209.7_ |
C00._ - C96 ._ | Malignant neoplasms, stated or presumed to be primary (of specified sites), and certain specified histologies |
| 173.00, 173.09 | C44.00, C44.09 | Unspecified and other specified malignant neoplasm of skin of lip |
| 173.10, 173.19 | C44.101, C44.191 | Unspecified and other specified malignant neoplasm of eyelid, including canthus |
| 173.20, 173.29 | C44.201, C44.291 | Unspecified and other specified malignant neoplasm of ear and external auricular canal |
| 173.30, 173.39 | C44.30, C44.39 | Unspecified and other specified malignant neoplasm of skin of other and unspecified parts of face |
| 173.40, 173.49 | C44.40, C44.49 | Unspecified and other specified malignant neoplasm of scalp and skin of neck |
| 173.50, 173.59 | C44.50_, C44.59_ | Unspecified and other specified malignant neoplasm of skin of trunk, except scrotum |
| 173.60, 173.69 | C44.601, C44.691 | Unspecified and other specified malignant neoplasm of skin of upper limb, including shoulder |
| 173.70, 173.79 | C44.701, C44.791 | Unspecified and other specified malignant neoplasm of skin of lower limb, including hip |
| 173.80, 173.89 | C44.80, C44.89 | Unspecified and other specified malignant neoplasm of other specified sites of skin |
| 173.90, 173.99 | C44.90, C44.99 | Unspecified and other specified malignant neoplasm of skin, site unspecified |
| 225.0 - 225.9 | D32._ - D33._ | Benign neoplasm of brain and spinal cord neoplasm |
| 227.3, 227.4 | D35.2, D35.3 | Benign neoplasm of pituitary gland, craniopharyngeal duct (pouch) and pineal gland |
| 228.02 | D18.02 | Hemangioma; of intracranial structures |
| 228.1 | D18.1 | Lymphangioma, any site Note: Includes only lymphangioma of the brain, other parts of nervous system and endocrine gland |
| 230.0 - 234.9 | D00._ - D09._ | Carcinoma in situ |
| 237.0 - 237.1 | D44.3 - D44.5 | Neoplasm of uncertain behavior of endocrine glands and nervous system: pituitary gland, carniopharyngeal duct and pineal gland |
| 237.5, 237.6, 237.9 | D42._, D43.0, D43.2 - D43.4, D43.7 - D43.9 |
Neoplasm of uncertain behavior of endocrine glands and nervous system: brain and spinal cord, meninges, endocrine glands and other and unspecified parts of nervous system |
| 238.4 | D45 | Polycythemia vera |
| 238.6 | D47.Z9 | Plasma cells |
| 238.7_ | D46._, D47._ | Other lymphatic and hematopoietic diseases |
| 239.6, 239.7 | D49.6 | Neoplasms of unspecified nature, brain, endocrine glands and other parts of nervous system |
| 273.3 | C88.0 | Macroglobulinemia (Waldenstrom’s macroglobulinemia) |
| 277.89 | C96.5, C96.6 | Other specified disorders of metabolism Reportable includes terms: Hand-Schuller-Christian disease; histiocytosis (acute)(chronic); histiocytosis X (chronic) |
| 288.4 | D76.1 - D76.3 | Hemophagocytic syndrome (histiocytic syndromes |
| 289.6 | D45 | Familial polycythemia (synonym for polycythemia vera) |
The following codes are not reportable per se, but they should alert registrars to look for the first malignant neoplasm associated with these codes.
2012 Supplementary List #1 ICD-9-CM Codes That Should be Followed by or Associated with a Neoplasm Code (with Equivalent ICD-10-CM Codes)
| ICD-9-CM Code* | ICD-10-CM Code** | Explanation OF ICD-9-CM Code |
|---|---|---|
| 258.0_ | E31.22, E31.23 | Polyglandular activity in multiple endocrine adenomatosis [MEN] Note: Use additional codes to identify any malignancies and other conditions associated with the syndromes |
| 284.2 | D61.82 | Myelophthisis Note: Code first the underlying disorder, such as: malignant neoplasm of breast (174.0-174.9, 175.0-175.9) |
| 285.22 | D63.0 | Anemia in neoplastic disease Note: Assign also a code for the neoplasm causing the anemia |
| 289.83 | D75.81 | Myelofibrosis (9961/3) Note: Code first the underlying disorder, such as: malignant neoplasm of breast (174.0-174.9, 175.0-175.9) |
| 331.7 | G94 | Cerebral degeneration in diseases classified elsehwere Note: code first underlying disease, such as neoplastic disease (140.-239.9) |
| 336.3 | G99.2 | Myelopathy in other diseases classified elsewhere Note: Code first underlying disease as: myelopathy in neoplastic disease (140.0-239.9) |
| 357.3 | G13.0, G13.1 | Polyneuropathy in malignant disease Note: Code first underlying disease (140.0-208.9) |
| 358.1 | G73.3 | Myasthenic syndromes in other diseases classified elsewhere Note: code first underlying disease, such as neoplasm (C00-D49) |
| 358.31 | G73.1 | Eaton-Lambert syndrome in neoplastic disease (Effective 10/1/2011) |
| 511.81 | J91.0 | Malignant pleural effusion Note: Code first malignant neoplasm, if known |
| 512.82 | J93.12 | Secondary spontaneous pneumothorax Note: Code first underlying condition such as: cancer metastatic to lung (197.0) or primary lung cancer (162.3-162.9) |
| 731.1_ | M90.6_ | Osteitis deformans in diseases classified elsewhere Note: Code first underlying malignant neoplasm of bone (170.0-170.9) |
| 731.3 | M89.70_ | Major osseous defect Note: Code first underlying malignancy, if known, such as: Malignant neoplasm of bone (170.0-170.9) |
| 789.51 | R18.0 | Malignant ascites Note: Code first malignancy |
| V07.5_ | Z79.81_ | Prophylactic use of agents affecting estrogen receptors and estrogen levels Note: code first, if applicable: malignant neoplasm of breast (174.0-174.9, 175.0-175.9) |
| V58.42 | Z48.3 | Aftercare following surgery for neoplasm Note: Conditions classifiable to 140-239 |
NOTE: Cases with these codes should be screened as registry time allows. These are neoplasm-related secondary conditions for which there should also be a primary diagnosis of a reportable neoplasm. Experience in the SEER registries has shown that using the supplementary list increases casefinding for benign brain and CNS, hematopoietic neoplasms, and other reportable diseases.
2012 Supplementary List #2 ICD-9-CM Code List to Screen for Cancer Registry Cases Not Identified by Other Codes (with equivalent ICD-10-CM codes)
| ICD-9-CM Code* | ICD-10-CM Code** | Explanation of ICD-9-CM Code |
|---|---|---|
| 042 | B20 | Acquired Immunodeficiency Syndrome (AIDS) Note: Medical coders are instructed to add codes for AIDS-associated malignancies. Screen 042 for history of cancers that might not be coded |
| 079.4, 79.5_ | B97.7 | Human papillomavirus; Retrovirus (HTLV, types I, II and 2) |
| 173.01, 173.02 | C44.01, C44.02 | Basal and squamous cell carcinoma of skin of lip |
| 173.11, 173.12 | C44.111, C44.121 | Basal and squamous cell carcinoma of eyelid, including canthus |
| 173.21, 173.22 | C44.211, C44.221 | Basal and squamous cell carcinoma of ear and external auricular canal |
| 173.31, 173.32 | C44.31_, C44.32_ | Basal and squamous cell carcinoma of skin of other and unspecified parts of face |
| 173.41, 173.42 | C44.41, C44.42 | Basal and squamous cell carcinoma of scalp and skin of neck |
| 173.51, 173.52 | C44.51_, C44.52_ | Basal and squamous cell carcinoma of skin of trunk, except scrotum |
| 173.61, 173.62 | C44.611, C44.621 | Basal and squamous cell carcinoma of skin of upper limb, including shoulder |
| 173.71, 173.72 | C44.711, C44.721 | Basal and squamous cell carcinoma of skin of lower limb, including hip |
| 173.81, 173.82 | C44.81, C44.82 | Basal and squamous cell carcinoma of other specified sites of skin |
| 173.91, 173.92 | C44.91, C44.92 | Basal and squamous cell carcinoma of skin, site unspecified |
| 209.40 - 209.69 | D3A._ | Benign carcinoid tumors |
| 210.0 - 229.9 | D10._ - D31._, D34, D35.0 , D35.1 , D35.5 - D35.9, D36._ | Benign neoplasms (except for 225.0-225.9, 227.3, 227.4, 228.02, 228.1, which are listed in the Reportable list) Note: Screen for incorrectly coded malignancies or reportable by agreement tumors |
| 235.0 - 236.99 | D37 ._ - D41._ | Neoplasms of uncertain behavior Note: Screen for incorrectly coded malignancies or reportable by agreement tumors |
| 237.2 - 237.4 | D44.1, D44.2, D44.6 - D44.9 | Neoplasm of uncertain behavior of adrenal gland, paraganglia and other and unspecified endocrine glands Note: screen for incorrectly coded malignancies or reportable by agreement tumors |
| 237.7_ | Q85._ | Neurofibromatosis and Schwannomastosis |
| 238.0 - 239.9 | D48._, D49._ | Neoplasms of uncertain behavior (except for 238.4, 238. 6, 238. 7_, 239.6, 239.7, which are listed in the reportable list) Note: Screen for incorrectly coded malignancies or reportable by agreement tumors |
| 249.20 | E08._ | Secondary diabetes mellitus with hypersmolarity Note: Includes diabetes in neoplastic disease |
| 273.0 | D89.0 | Polyclonal hypergammaglobulinemia Note: screen for blood disorders due to neoplasm |
| 273.1 | D47.2 | Monoclonal gammopathy of undetermined significance (9765/1) Note: Screen for incorrectly coded Waldenstrom macroglobulinemia or progression |
| 273.2 | D89.1 | Other paraproteinemias |
| 273.8, 273.9 | E88.09 | Other and unspecified disorders of plasma protein metabolism Note: includes plasma disorders due to neoplastic disease |
| 277.88 | E88.3 | Tumor lysis syndrome (following neoplastic chemotherapy) |
| 279.02, 279.03, 279.05, 279.12 | D80.3, D80.4, D80.5 | Select IgM immunodeficiency and other immunoglobulin deficiencies Note: Associated with lymphoproliferative disorders |
| 279.2, 279.3 | D81.0 - D81.2, D81.6, D81.7, D81.89, D81.9, D84.9 | Combined and unspecified immunity deficiency Note: Associated with lymphoproliferative disorders |
| 279.41, 279.49 | D89.82, D89.89 | Autoimmune lymphoproliferative syndrome Note: Associated with lymphoproliferative disorders |
| 279.50 - 279.53 | D89.81_ | Graft-versus-host disease |
| 279.8, 279.9 | D84.1, D89.82, D89.9 | Other and unspecified disorders involving the immune mechanism Note: Associated with lymphoproliferative disorders |
| 284.1_ | D61.8_ | Pancytopenia Note: screen for anemia disorder related to neoplasm |
| 284.81 | D60._ | Red cell aplasia (acquired) (adult) (with thymoma) Note: screen for anemia disorder related to neoplasm |
| 284.89 | D61.1 - D61.3, D61.89, D61.9 | Other specified aplastic anemias Note: screen for anemia disorder related to neoplasm |
| 284.9 | D61.9 | Aplastic anemia Note: screen for anemia disorder related to neoplasm |
| 285.0 | D64.01 - D64.4 | Sideroblastic anemia Note: screen for anemia disorder related to neoplasm |
| 285.3 | D64.81 | Anemia due to antineoplastic chemotherapy |
| 287.39, 287.49, 287.5 | D69.49, D69.59, D69.6 | Secondary, other primary and unspecified thrombocytopenia Note: Screen for incorrectly coded thrombocythemia |
| 288.03 | D70.1 | Drug induced neutropenia Note: screen for anemia disorder related to neoplasm |
| 288.3 | D72.1 | Eosinophilia Note: This is the code for eosinophilia (9964/3). Not every case of eosinophilia is associated with a malignancy. Diagnosis must be “Hypereosonophilic syndrome” to be reportable |
| 289.89, 289.9 | D75.89, D75.9, D89.2 | Other and unspecified diseases of blood and blood forming organs Note: screen for anemia disorder related to neoplasm |
| 323.81 | G04.81 | Other causes of encephalitis and encephalomyelitis Note: includes encephalitis due to neoplasm |
| 337.9 | G90.9 | Unspecified disorders of autonomic nervous system Note: Includes myelopathy in neoplastic diseases |
| 338.3 | G89.3 | Neoplasm related pain (acute)(chronic) |
| 352.9 | G52.9 | Unspecified disorder of cranial nerves Note: includes cranial nerves disorder in neoplastic disease |
| 353.8 | G54.8 | Other nerve root and plexus disorders Note: includes nerve root and plexus disorders in neoplastic disease |
| 516.5 | J84.82 | Adult pulmonary Langerhans cell histiocytosis |
| 630 | O01._ | Hydatidiform mole Note: This is a benign tumor that can become malignant. If malignant, it should be reported as Choriocarcinoma (9100/3) and will have a malignancy code in the 140-209 range |
| 648.9_ | O9A.1_ | Other current conditions classifiable elsewhere complicating pregnancy Note: Includes: malignant neoplasm complicating pregnancy |
| 713.8 | M36.1 | Arthropathy associated with other conditions Note: includes arthropathy in neoplastic disease |
| 728.9 | M62.9 | Unspecified disorder of muscle, ligament, and fascia Note: Includes disorder of muscle, ligament, fascia in neoplastic disease |
| 733.1_ | M84.5_ | Pathologic fracture Note: includes pathologic fracture due to neoplasm |
| 758.0 | Q90.0_ | Down's Syndrome Note: Screen for leukemia associated with Down’s Syndrome (9898/3) |
| 780.79 | R53.0 | Neoplastic (malignant) related fatigue |
| 785.6 | R59._ | Enlargement of lymph nodes Note: Screen for large B-cell lymphoma arising in HHV8-associated multicentric Castleman disease (9738) |
| 790.93 | R97.2 | Elevated prostate specific antigen (PSA) |
| 791.9 | R82.8 | Other non specific findings on examination of urine(abnormal findings on cytological and histological examination of urine) |
| 792.0, 792.2, 792.4, 792.9 | R83.9, R84.9, R85.9, R86.9 | Non specific abnormal findings in other body structures: cerebrospinal fluid, semen and saliva and other |
| 793.11 | R91.1 | Solitary pulmonary nodule (Effective 10/1/2011) |
| 793.8_ | R92._ | Nonspecific (abnormal) findings on radiological and examination of body structure (breast) |
| 795.0_ - 795.1_ | R87.6_ | Papanicolaou smear of cervix and vagina with cytologic evidence of malignancy |
| 795.4 | R89.7 | Other nonspecific abnormal histological findings |
| 796.7_ | R85.6_ | Abnormal cytologic smear of anus and anal HPV |
| 795.8_ | R97._ | Abnormal tumor markers; Elevated tumor associated antigens [TAA] |
| 962.1 | T38.6_ | Poisoning by hormones and synthetic substitutes: Androgens and anabolic congeners |
| 963.1 | T45.1_ | Poisoning by primarily systemic agents: antineoplastic and immunosuppressive drugs |
| 990 | T66 | Effects of radiation, unspecified (radiation sickness) |
| 996.54 | T85.4_ | Mechanical complication of other specified prosthetic device, implant, and graft-due to breast prosthesis |
| 996.85 | T86.0_ | Complication of transplanted organ |
| 999.3_ | T80.2_ | Complications due to central venous catheter |
| E858.0 | T38.6_ | Accidental poisoning by other drugs: Hormones and synthetic substitutes |
| E858.1 | T45.1_ | Accidental poisoning by other drugs: Primary systemic agents |
| E858.2 | T45.8_, T45.9_ | Agents primarily affecting blood constituents |
| E873.2 | Y63.2 | Failure in dosage, overdose of radiation in therapy (radiation sickness) |
| E878.0 | Y83.0 | Abnormal reaction of surgical operation with transplant of whole organ |
| E879.2 | Y84.2 | Overdose of radiation given during therapy (radiation sickness) |
| E930.7 | None | Adverse reaction of antineoplastic therapy-Antineoplastic antibiotics |
| E932.1 | None | Adverse reaction to antineoplastic therapy-Androgens and anabolic congeners |
| E933.1 | None | Adverse effect (poisoning) of immunosuppressive drugs |
| V10.0_ - V10.9_ | Z85.0_ - Z85.8_ | Personal history of malignancy Note: Screen for recurrences, subsequent primaries, and/or subsequent treatment |
| V12.41 | Z86.011 | Personal history of benign neoplasm of the brain |
| V13.89 | Z86.000, Z86.008, Z86.011 | Personal history of unspecified malignant neoplasm and history of in-situ neoplasm of other site |
| V15.22 | Z98.871 | Personal history of undergoing in utero procedure during pregnancy Note: includes procedures on fetus for cancer related diagnosis |
| V15.3 | Z92.3 | Other personal history presenting hazards to health or radiation Note: Personal history of therapeutic radiation |
| V16._ | Z80._ | Family history of malignant neoplasm |
| V42.81, V42.82 | Z94.81, Z94.84 | Organ or tissue replaced by transplant bone marrow, stem cell |
| V51.0 | Z42.1 | Encounter for breast reconstruction following mastectomy |
| V52.4 | Z44.3_ | Fitting and adjustment of prosthetic device and implant (breast) |
| V54.2_ | M84.5_ | Aftercare for healing pathologic fracture |
| V58.0, V58.1_ | Z51.0, Z51.1_ | Encounter for radiotherapy, chemotherapy, immunotherapy |
| V58.42 | M84.4_ | Aftercare following surgery for neoplasm |
| V66.1, V66.2 | Z51.89 | Convalescence and palliative care following radiotherapy, chemotherapy |
| V66.7 | Z51.5 | Encounter for palliative care |
| V67.1, V67.2 | Z08 | Follow up examination: following radiotherapy or chemotherapy |
| V71.1 | Z03.89 | Observation for suspected malignant neoplasm |
| V72.83 | Z01.818 | Other specified pre-operative examination (including chemotherapy) |
| V76._ | Z12._ | Special screening for malignant neoplasms |
| V78.8, V78.9 | Z13.0 | Other and unspecified disorders of blood and blood forming organs |
| V86 ._ | Z17 ._ | Estrogen receptor positive status [ER+], negative status [ER-] |
| V87.41 | Z92.21 | Personal history of antineoplastic chemotherapy |
| V87.43 | Z92.23 | Personal history of estrogen therapy |
| V87.46 | Z92.25 | Personal history of immunosuppression therapy |
The following codes are associated with the paraneoplastic syndrome. Paraneoplastic syndrome by itself is not cancer. It’s a disease or symptom that is the consequence of cancer but is not due to the local presence of cancer cells. A paraneoplastic syndrome may be the first sign of cancer. These codes have been removed from the supplemental list and are now in their own list.
| ICD-9-CM Code* | ICD-10-CM Code** | Explanation of ICD-9-CM Code | |
|---|---|---|---|
| 253.6 | E22.2 | Syndrome of inappropriate secretion of antidiuretic hormone | |
| 259.2 | E34.0 | Carcinoid syndrome | |
| 259.8 | E34.8 | Other specified endocrine disorders | |
| 275.42 | E83.52 | Hypercalcemia | |
| 379.5_ | H55._ | Nystagmus and other irregular eye movements | |
| 686.01 | L88 | Pyoderma gangrenosum | |
| 694.4 | L10.81 | Pemphigus | |
| 695.89 | L30.4, L53.8, L98.2 | Other specified erythematous conditions | |
| 701.2 | L83 | Acquired acanthosis nigricans | |
| 710.3 | M36.0 | Dermatomyositis | |
| 710.4 | M33.2_ | Polymyositis | |
*International Classification of Diseases, 9th Revision, Clinical Modification, Sixth Edition (Hospital Edition), 2012
**International Classification of Diseases, ICD-10-CM Tabular List of Diseases and Injuries, 2012, DRAFT. All information regarding ICD-10-CM, including the conversions of ICD-9-CM to ICD-10-CM based on the 2012 General Equivalency Mappings provided by CMS and NCHS on the CDC website for ICD coding: https://www.cdc.gov/nchs/icd/icd-10/index.html
